Contact Us

PNH Patient Registry

Contact Us


Aplastic Anemia and MDS International Foundation (AAMDSIF)
4330 East West Highway, Suite 230
Bethesda, Maryland 20814
(800) 747-2820

Registry Contact
(800) 747-2820


North Star Review Board

An Institutional Review Board, for the purpose of protecting Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies.  For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of the PNH Patient Registry team, you may contact North Star Review Board at 877-673-8439 (toll free) or

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