The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry

Making a difference through research

Welcome to the Global PNH Patient Registry! Every patient’s story and experience are a unique, invaluable part of a disease’s natural history. Join today and let your data tell your story.

For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?