The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry
Making a difference through research
Welcome to the Global PNH Patient Registry! Every patient’s story and experience are a unique, invaluable part of a disease’s natural history. Join today and let your data tell your story.
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?