PNH Registry Announcement

We are pleased to announce the relaunch of the Global PNH Patient Registry on NORD’s IAMRARE® Program! The Global PNH Patient Registry creates a platform for patients around the world to strengthen their voices and share information about PNH. Designed with the input of scientists and patients, this global resource will provide data for researchers to better understand how PNH affects patients. Participation can be done at your own pace and is open to anyone with a paroxysmal nocturnal hemoglobinuria (PNH) diagnosis. Join now and let your data tell your story!